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As a parent that has walked in the DPIG world I wish Peace to you and family. It is and always will be a sucky situation for anyone and their family to be faced with.

Our daughter Rachael passed at the age of 16 back in November 28, 2002. She was diagnosed two years earlier November 7, 2000. At that time therapy options were IMRT radiation which RI Hospital Radiology were the only ones regionally that had that capability and chemo. And as you noted there is no chemo, even today, that will work on that cancer (glioblastoma) as it is one of the most aggressive cancers anyone could face. And medical options and therapy choices haven't changed much in 30 years.

We also consulted personally with Dr Burzynski and 6 other major pediatric brain tumor clinics in trying to find the right approach to a known ending .. no matter what choice ... Hope was the best one you're left with. Hoping something new come along or a good response to the therapy chosen ... while you wait in hope.

I won't go into what choices we made with Rachael because we learned from others in the same situation, there is no wrong choice or path. In the end we live without our kid ... and all that matters after is you have to believe they knew you we were doing everything and it makes no difference what others think. They aren't you.

From: ‘Dr. Burzynski’s hope, optimism dwarf stature of those who tear down his work’

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